Capt_Gruuvy
Stay-at-Home Astronaut
First off I want to update you all on my diagnosis. Last time we chatted I was diagnosed with Advanced Dementia. This was a radical statement and incorrect. I have an Executive Cognitive Disorder which effects my ability to speak and remember. I am way too alert for dementia. Still no recovery from this. Lifestyle adjustments are in order.
This is really good news compared to the dismal diagnosis prior.
Secondly, I had mentioned that I had not been able to work. I have not worked since Aug 2011. Assume that everything you imagine would happen to you if you had not worked this long has happened to me. We have lost everything but .... we are debt free now and live in a comfortable little rental and drive a free car. God has been very good to us.
Next, I have finally received my Fully Favorable letter from SSI. This is huge. This took three years to complete and within that time it is a bunch of hurry up and wait to be denied. So this is what I want you to take away from this adventure; File early, file with an attorney. I figured that the paperwork and Drs information I had would get me through this system in one try. This was not the case. I was denied three times before I got a hearing date and was able to plead my case before a judge. I had an attorney at this time. If you think you need to apply for SSDI benefits do not wait. Every event take 6 months to process.
Here's what I have learned about some natural remedies. Coconut oil is great. I fry my eggs in it. So much better tasting than butter. I use Coconut oil in the wok. I cook alot of chinese food. I also take 2000mg of Omega 3 and 250mg of B12 each day. I walk each day and do a little Yoga workout that keeps me in shape. My meds have a weight gain issue so I struggle to remain just shy of 210lbs. The benefits of the natural remedies is that I remain a little more even in mood and physical condition.
Here is what I learned about dealing with my memory issues. I have tried everything that seems appropriate for assisting my memory. I have a nice phone that does really cool stuff and even has a Calender, voice recorder and Notes app. None of this is worth it. I use a little notebook and a pen. I can't remember squat. If I put anything in the phone I cannot remember to look at the Calendar again. Even alarmed entries are eventually forgotten. The pen and paper is looked at more often.
Here is what I think about riding again. I really want to. But, since I cannot drive over 30 minutes without some issue such as "Where am I going" a big boy bike is out of the question. I would like a smaller (600 or so) bike that I can ride locally. I don't get out much since I have no place to go but every so often there is an errand I'd like to run. Maybe a scooter would be good for this.
Here's the bottom line in case you didn't read the above since I was long winded: I'm facing a better future than was originally diagnosed. I have learned to deal with my disability that allows me to function fairly well. SSI is a process best played out by professionals. Riding is no longer something that I simply cannot do .... I can ride, just with limitations.
I hope you cats are well. I miss hanging out here with you. Hopefully I can get another bike here soon and participate in some riding adventures.
This is really good news compared to the dismal diagnosis prior.
Secondly, I had mentioned that I had not been able to work. I have not worked since Aug 2011. Assume that everything you imagine would happen to you if you had not worked this long has happened to me. We have lost everything but .... we are debt free now and live in a comfortable little rental and drive a free car. God has been very good to us.
Next, I have finally received my Fully Favorable letter from SSI. This is huge. This took three years to complete and within that time it is a bunch of hurry up and wait to be denied. So this is what I want you to take away from this adventure; File early, file with an attorney. I figured that the paperwork and Drs information I had would get me through this system in one try. This was not the case. I was denied three times before I got a hearing date and was able to plead my case before a judge. I had an attorney at this time. If you think you need to apply for SSDI benefits do not wait. Every event take 6 months to process.
Here's what I have learned about some natural remedies. Coconut oil is great. I fry my eggs in it. So much better tasting than butter. I use Coconut oil in the wok. I cook alot of chinese food. I also take 2000mg of Omega 3 and 250mg of B12 each day. I walk each day and do a little Yoga workout that keeps me in shape. My meds have a weight gain issue so I struggle to remain just shy of 210lbs. The benefits of the natural remedies is that I remain a little more even in mood and physical condition.
Here is what I learned about dealing with my memory issues. I have tried everything that seems appropriate for assisting my memory. I have a nice phone that does really cool stuff and even has a Calender, voice recorder and Notes app. None of this is worth it. I use a little notebook and a pen. I can't remember squat. If I put anything in the phone I cannot remember to look at the Calendar again. Even alarmed entries are eventually forgotten. The pen and paper is looked at more often.
Here is what I think about riding again. I really want to. But, since I cannot drive over 30 minutes without some issue such as "Where am I going" a big boy bike is out of the question. I would like a smaller (600 or so) bike that I can ride locally. I don't get out much since I have no place to go but every so often there is an errand I'd like to run. Maybe a scooter would be good for this.
Here's the bottom line in case you didn't read the above since I was long winded: I'm facing a better future than was originally diagnosed. I have learned to deal with my disability that allows me to function fairly well. SSI is a process best played out by professionals. Riding is no longer something that I simply cannot do .... I can ride, just with limitations.
I hope you cats are well. I miss hanging out here with you. Hopefully I can get another bike here soon and participate in some riding adventures.
for the best for you always!
