Arthritis

Obo

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@Uncle Phil
It sounds like, with current medical technology, that if a person afflicted with this lives long enough the need for surgery will become unavoidable. I'm curious to know if there is any benefit in doing the surgery earlier than later. Would someone who has the surgery earlier prevent more serious damage and therefore have a better outcome than someone who waited until they had no choice?
If the surgery you are talking about is replacement, there's no real difference in waiting other than weighing the pros and cons - surgery in itself is dangerous, knee replacement physio is painful but so is arthritis, replaced joints to wear out after 20 years or so...

My mom had 2 hips done. One hip has basically disintegrated they said, the other was ok, but needed to be done for pain reasons. Both replacements and recoveries went about the same.
 

Uncle Phil

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@Uncle Phil
It sounds like, with current medical technology, that if a person afflicted with this lives long enough the need for surgery will become unavoidable. I'm curious to know if there is any benefit in doing the surgery earlier than later. Would someone who has the surgery earlier prevent more serious damage and therefore have a better outcome than someone who waited until they had no choice?
My experience has been most 'replacement/repair' doctors do not want to do their work (especially with knees) over concerns about the replacement/repair not lasting long enough. I think the determining issue in the US is how the affected body part influences your quality of life. They tend to proceed when there is serious impairment and the patient is willing to proceed. My shoulder doctor and I decided that I will be one the say when I get my shoulders replaced. The x-rays indicate the sockets are pretty much shot, but I still have good range of motion and the pain is reasonably bearable at this point. So I know they will eventually have to be replaced, but they are not affecting my quality of life except getting up and down off the floor (sounds like a painful bowl of cereal - snap, crackle and pop so no more camping for me). My hand surgeries were 15 years a part and I learned from the experience (I did have both hands done a few months apart in both cases). I went too long the first time trying all sorts of the 'recommended' stuff (cortisone shots, various potions, lotions and commotions ;)) until I had some damage and I said 'We've got fix this'. When the second hand issue came up, I took round of cortisone shots which didn't fix it and I said 'let's do it' after another look at the x-rays. I went too long on my right knee but when the left one blew up, I went from scope to replacement in 4 months. I'm a little slow being from Tennessee, but I do catch on! :biggrin: I've also gotten pretty good a looking at x-rays and knowing what old 'Arthur' looks like. It's a tough decision and a tough call as I've had 15 orthopedic surgeries, none of which were enjoyable, but they solved the problem. Doctors tend to hesitate at the first signs of damage but as Chris (Mark) did, she had her knees(s) replaced at a young age because that was the only solution for her. IIRC, she's been through it a second time and has also had a 'tune-up'. I think the key is having a doctor that isn't 'cut-happy' and is willing to work with their patients. You have to be the one that decides when it is 'time'.
 
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I was on Methotrexate for a while too. It worked well but yes it can build up in your liver.
I spent about 8 years on Humira. Worked amazingly. The biologics work on all the autoimmune conditions. Psoriatic arthritis, Rheumatoid, Crohn's, colitis, ... they're all in one way or another the result of your immune system.

It's worth discussing biologics with your doctor. Theres a small chance they are somehow involved with causing my current cancer but it's not proven and its possible for a lot of people to use them only into remission and then cycle on and off to mitigate some risks
 
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Thanks! My new-to-me '04 is my "I beat cancer" gift.
Prognosis is fully curable, on week 3 of7 for radiation and chemo. I'm at Dana-Farber in Boston.
Cant wait to be done and recovered. Should be late March or early april to start feeling normal. Perfect time to get my new toy rolling.
 
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Theres a small chance they are somehow involved with causing my current cancer
Yes, I'm familiar with Humira - I know a couple of people who are on it and it is working wonderfully for them (one of my friends takes it for psoriatic arthritis); I also know one of the North American reps for Humira; he had Crohn's and it nearly took his life at a young age. He underwent an ileostomy in his late teens and will live with a 'bag' for the rest of his life, but he is now strong, healthy and disease-free. Helluva way to get well, though. :( And you're quite right, there are risks involved with the biologics, as with any powerful drug.

Glad to hear about the positive prognosis and that the proverbial light at the end of the tunnel is now visible to you! Sending you good wishes for a full recovery and lots of miles of smiles. :)

Patty
 
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...I think the determining issue in the US is how the affected body part influences your quality of life. They tend to proceed when there is serious impairment and the patient is willing to proceed. ...
I had my right knee replaced in November 2015. I went to the surgeon and he offered me two choices. Take out some more cartilage or total knee replacement. I told him I'd take the first option, and then he told me that would only last about six months. What then, I asked? Option 2, total knee replacement.

I went to the pre-surgery briefing and almost cancelled. Everyone in there was O--L--D. Geriatric. Canes, walkers. I could still walk on level ground and thought I'd probably be able to continue on as is with some modifications to my lifestyle.

I'm glad I did the surgery. In the summer of 2018, I hiked to the top of the East Observation Point in Zion. That's an 8 mile roundtrip hike and about 2000 feet of elevation gain. That was after walking several miles on the road and trails below.



Without the surgery and joint replacement, I couldn't have done that.

Chris
 
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the Ferret

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Thanks for thinking of me, my friend! Yes, to say that I'm having a rough time of it would be an understatement, as I have both rheumatoid and osteoarthritis. The osteo is what's ailing my hands - both thumb joints and left wrist, to be exact, and the rheumatoid (or "RA") makes me sick all over...very sick. It's something I wouldn't wish on my worst enemy. RA is systemic - it attacks joints, yes, but it can also wreak havoc on the sufferer's internal organs; in my case, it's my intestinal tract. During severe attacks, I'm in so much pain/discomfort I can't even go out and other than the foods I have found to be triggers by trial and error (such as dairy and legumes, i.e., lentils, beans, etc.), I have no idea whether what I eat is going to make me sick or not. There is a proven correlation between some types of arthritis and inflammatory bowel disease, so none of this is all that surprising - the worst part of it is that nobody's quite sure whether my gut problems are just the RA, or whether I also have Crohn's Disease - they're still trying to figure that one out.

RA attacks can also last quite a while - during the last long one (over a year), I became really weak and dangerously thin. My rheumatologist had me on a really nasty medication called methotrexate for a couple of years: it's a drug normally used for chemotherapy but in lower doses and in combination with hydroxychloroquine can be effective in treating RA in some people. I had to self-inject the stuff once a week. It's also cytotoxic and can do nasty things to your liver, kidneys, immune system, etc., so you have to be closely monitored when on it. It didn't really work for me and I hated putting that stuff in my body, so we agreed that I should stop taking it.

Right now the RA isn't roaring too loudly, it's mostly the osteo that's flaring up and making me miserable - my hands are in agony and the base of my left thumb looks like a small football. I also have some Voltaren and I find that it does work fairly well, but I'm a frequent hand washer and you can't just keep re-applying it. So these days I'm pretty much surviving on Tylenol or Advil (the liquid gels, since they work faster). I have to be careful though, since pain meds can mess with your stomach and I already have enough problems in that area! I have also started taking Omega3, which seems to be helping with the gut issues and overall energy. Other than that, I'm kind of at a loss. I wish I had a wonderful solution to offer, but different things work for different people; some of the posters in this thread have offered some pretty good advice though, I think!

Hang in there, fellow sufferers!

Patty
Patti thanks for your input and sorry you are experiencing this misery. In 2017 I was diagnosed with Microscopic Colitis, a milder form of Crohns. Lost a lot of weight very quickly. I had no idea there could be a link between the colitis and the arthritis. Anyhow I fully understand the gut problems which is why the Rheumatologist put me on a topical anti inflammatory , the Voltarin, rather than an ingest able anti inflammatory so as not to in flame with my gut. I was on a med called Budesonide for 18 moths, it really helped my gut, but I tended to bruise badly whenever I bumped into something like someone on blood thinners. I'm off it now and doing "ok" , and have gained some of my weight back, but like Crohn's, with colitis, you never know when you are going to have an attack.

I used to be a big hand washer too, now I'm a big finger tip washer lol, so as not to wash off the Voltarin.
 

Mark

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but as Chris (Mark) did, she had her knees(s) replaced at a young age because that was the only solution for her. IIRC, she's been through it a second time and has also had a 'tune-up'.
You remember correctly. Chris was bone on bone from 12 years old and had her right knee replaced at 32. That one lasted 11 years. The revision was extensive because she had spiral fractures below the knee before she was seen by the Dr. They had to use 'cadaver calc' to strengthen the bone below the knee on that one. That revision lasted 10 years when it started 'locking up' she went in and the xrays showed she had snapped the head off a stainless steel screw which was then 'free floating' around the joint and getting stuck (The doctor had never seen that failure. Chris didn't mention that she had been doing 100 squats a day for a couple of months before the failure :D).
That revision was done 18 years ago; so, I suspect she'll be going in to find out how long before she needs the 'brake pad' replaced again. (The 'brake pad' rests on top of the tibial plateau and the metal top portion of a total knee replacement bears and wears on the pad.)

I don't have knee/hip issues; but, from what I watched with Chris my advice is a shorter version of Uncle Phil's:
-- Get them done quickly and while you're still healthy enough to get through the PT because the effort you put into the PT makes all the difference in your life after a joint repair.

Now about my left foot... I have had one steroid shot which helped for a couple of months and I'm going to schedule an appointment with the doc that did my son's torn Achilles tendon soon to see if there is anything that can be done.
 
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The only after-market part I have is a right hip joint, but my left one will need doing in the future. I pushed myself to walk as much as I could, and was walking without aid by my three-week checkup. Both of my knees ache sometimes, but the knee-wraps I wear really help. https://kneefit.co/

The important thing is that I can still ride.
 

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-- Get them done quickly and while you're still healthy enough to get through the PT because the effort you put into the PT makes all the difference in your life after a joint repair.
As I always say, the docs put the stuff in, the therapists make it work, and the patient has to keep working it to keep it working! :biggrin:
If you can't do the PT, then I don't recommend doing the surgery as it could be worse than before the surgery.
 
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Anyone here dealing with osteoarthritis? I have developed it, in both hands, but particularly in my right hand and right wrist to the point it is affecting my riding. Right hand joints are swollen and stiff and painful making it hard to grip and use throttle, release throttle and raise fingers to use the front brake. Also can't open twist off lids, lift a heavy bag with one hand, make a tight fist etc. I went to a rheumatologist and she prescribed a topical gel anti inflammatory 4x day called Voltarin. At first it seemed to work pretty well, and it still helps some but it's still an issue for riding.

Any of you sufferer's finding anything that helps a lot?
Did your doc actually say the tests revealed arthritis? I have similar symptoms but it's not arthritis -- rather an allergic reaction to certain foods. Never had an allergy before, but now preservatives in foods will kick my joins into alot of pain. Cleaned up the diet and the pain drops alot! What causes it? Anything with mint, several kinds of nuts, cereal, coke, lots of stuff. Good time to start eating one ingredient foods. Try it, if a better diet doesn't help you can always to back to chocolate chip cookies.
 

Uncle Phil

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If it feels like somebody is driving a 16d nail through the base of your thumb, it's usually an inflamed scaphotrapeziotrapzoid (STT) joint. (Ain't that a mouth full!)
That's what the first hand surgeries dealt with where they grind out space between the bones and stick a tendon in there to act as cushion where the cartilage has worn out. Instead of space between the bones, mine looked like a hairline fracture which is why the bones were rubbing. If gripping using your thumb is extremely painful, it's usually the carpometacarpal (CMC) joint which was the second series of hand surgeries. They remove the connecting bone and replace it with a prothesis cushioned by a tendon. X-rays are pretty 'revealing' of this stuff from what my doctors showed me before they broke out the knives!
 
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Did your doc actually say the tests revealed arthritis? I have similar symptoms but it's not arthritis -- rather an allergic reaction to certain foods. Never had an allergy before, but now preservatives in foods will kick my joins into alot of pain. Cleaned up the diet and the pain drops alot! What causes it? Anything with mint, several kinds of nuts, cereal, coke, lots of stuff. Good time to start eating one ingredient foods. Try it, if a better diet doesn't help you can always to back to chocolate chip cookies.
Rheumatologist I visited said it was osteoarthritis, although she never took any x-rays, just looked at/ felt my hands, wiggled things around and watched my reaction to her wiggling. Due to the colitis I have had since 2017, I'm already on a pretty restrictive diet..mostly baked chicken and white rice, or pork chop, very little red meat, nothing fried or spicy, gluten free baked goods, bananas, yogurt, orange juice ,lemonade or tea. Very little soda, maybe 1/2 a can a week. The colitis is why she put me on a topical anti inflammatory. I'm allowed to take a couple tylenol for pain, but no ibuprohin or oral anti-inflammatories because it triggers the colitis...and trust me, you don't want a colitis flare up, unless you really like the decorating in your bathroom. Try 8-12 loose bms a day...every day.

UP...I wouldn't described it as like having a nail driven into my thumb base, it's just swollen, achy and difficult to grip hard or make a tight fist. Like someone smacked my hands with a rubber mallet, or I punched a wall and they are sore kinda feeling.
 

Andrew Shadow

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Not that it is of much help to you without a link to the article but I can't remember where I read the study so I don't have a link for you. I am also not up to date with arthritis as I am not being treated for it so this may be old news by now as I read this a long time ago. However, the article detailed how some research indicates that many types of arthritis are actually infections of some sort as opposed to an auto-immune disease. The joint damage is the result of the infection. They discovered that antibiotics were required over a long period of time, several months sometimes, but that it was the best treatment. Once the infection was irradiated the symptoms either disappeared or improved greatly depending on how far the damage to the joints had progressed before treatment was initiated. The study detailed that the biggest problem was convincing doctors to treat this as an infection because current treatment protocols were so ingrained that most doctors just dismissed the infection possibility. I mention it in case you think it is worth looking in to or asking your doctor about.
 

Uncle Phil

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UP...I wouldn't described it as like having a nail driven into my thumb base, it's just swollen, achy and difficult to grip hard or make a tight fist. Like someone smacked my hands with a rubber mallet, or I punched a wall and they are sore kinda feeling.
You might check with an orthopedic hand specialist (I'm blessed with a really good one here), as they are very skilled at diagnosing hand problems. X-rays will show if you have proper 'spacing' between your joints. If the spacing is there (cartilage does not usually show up well in x-rays), then it's probably not bone rubbing on bone from lack of cartilage. From what I understand, that's what generally causes 'standard' arthritic inflammation. I'm no doctor (I did sleep at a Holiday Inn Express one time ;)), but your condition sounds more like rheumatoid - lots of swelling and overall soreness rather than specific points of sharp pain. Mine did not swell much at all, but they sure felt like somebody was jabbing ice picks in my hands.
 
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Ferret, you have my sympathy for sure. Last year about this time I took a big fall. It was night time and I did not see a big ditch as I was crossing the street. First thing you do is put your hands out instantly to break your fall....bad idea. I had a black eye when my head hit the pavement and my right hand was numb. Over the coming days my hand swollen twice its size. Went to the emergency room and was diagnosed with a fracture and arthritist. Was put on ibuprofen and ice and had to go to a hand specialist. It took a long time for it to go down and even a year later I cannot make a complete closed fist. Doctor says I have a little ligament damage and the hand heals very slowly. So hang in there there is hope as this happened in Feb 2019 but I could still make the moonshine run in the middle of April. I could manipulate the throttle with my thumb and fore fingers. But I was not going to miss my chance to meet Uncle Phil and the gang:dr11:
 
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I was just diagnosed with osteoarthritis in my left wrist, pretty sure I have it in the right. I also have slight nerve damage determined by an electrical shock torture session. I am still able to ride thankfully with no discomfort but driving a cage is painful. I was a chaperone for my teen's snow retreat this past weekend and drove for 6 hours round trip and trying to find a comfortable position for my left was discouraging. Doing 10 push-ups with the guys at work last week put the pinky/ring finger side of my hand to sleep. And, I, am left handed.
 
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